Further Information

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Niemann-Pick Disorder

For more information on Niemann-Pick, and the people who are suffering from it, please go to some of the sites listed below:

National Niemann-Pick Disease Foundation

§         An educational site that answers questions about Niemann-Pick, and gives support to families suffering with it. ☻☻☻

Niemann-Pick Disease Group (UK)

§         A resource for families with the disease, and for anyone interested in learning about it. ☻☻

NPC Disease Progression: Illustration of One Child's Struggle

§         A truly moving pictorial presentation of one child’s progression with Niemann-Pick type C. This presentation accurately presents what it is like to watch a close family member suffer with the disease.  ☻☻☻☻☻

The National Foundation for Jewish Genetic Diseases

§         A database of genetic diseases found within the Jewish population. It also has definitions of genetic terms. ☻☻

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Donations can be made to:

The National Niemann-Pick Disease Foundation

The Ara Parseghian Medical Research Foundation